Date of Award
Master of Science
Limited parent/caregiver (P/C) knowledge regarding BCAA inborn errors of metabolism (IEM) could negatively impact patients' serum BCAA levels, resulting in adverse health outcomes. This study's purpose was to identify relationships between P/C's demographics and understanding of BCAA IEM to patient's serum leucine level. Participants included P/C and patients with a BCAA IEM. During patients' appointments, questionnaires were administered to P/Cs eliciting understanding of BCAA IEM and demographics. Regression analyses estimated relationships between P/C understanding of BCAA IEM and demographic factors to patients' serum leucine levels. No correlation was observed between P/C understanding of BCAA IEM and patient's serum leucine level. However, number of children in the household, P/C age, and P/C's employment status were significant, and potentially predictive of patient's leucine levels. Despite possible relationships of these demographic factors to patient's leucine levels, it is imperative that P/Cs adhere to disease-management recommendations to ensure their children's best health outcomes.
dissertation or thesis originally submitted to the local University of Memphis Electronic Theses & dissertation (ETD) Repository.
Denning, Ellen Marie Rakow, "Parental Understanding and Practice of Their Child's Diet for Branched-Chain Amino Acid Metabolic Disorders" (2016). Electronic Theses and Dissertations. 1513.