Title

Cancer Informatics for Cancer Centers: Scientific Drivers for Informatics, Data Science, and Care in Pediatric, Adolescent, and Young Adult Cancer

Authors

Anthony R. Kerlavage, Center for Biomedical Informatics and Information Technology, National Cancer Institute, Rockville, MD.
Anne C. Kirchhoff, Huntsman Cancer Institute and University of Utah, School of Medicine, Salt Lake City, UT.
Jaime M. Guidry Auvil, Center for Biomedical Informatics and Information Technology, National Cancer Institute, Rockville, MD.
Norman E. Sharpless, National Cancer Institute, Bethesda, MD.
Kara L. Davis, Maternal and Child Health Research Institute, Stanford School of Medicine, Stanford, CA.
Karlyne Reilly, Center for Cancer Research, National Cancer Institute, Bethesda, MD.
Gregory Reaman, Center for Drug Evaluation and Research, Food and Drug Administration, Bethesda, MD.
Lynne Penberthy, Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, MD.
Dennis Deapen, Norris Comprehensive Cancer Center, University of Southern California, Los Angeles, CA.
Amie Hwang, Norris Comprehensive Cancer Center, University of Southern California, Los Angeles, CA.
Eric B. Durbin, University of Kentucky, Markey Cancer Center, Lexington, KY.
Sara L. Gallotto, Massachusetts General Hospital, Boston, MA.
Richard Aplenc, Children's Hospital of Philadelphia, Philadelphia, PA.
Samuel L. Volchenboum, University of Chicago, Chicago, IL.
Allison P. Heath, Children's Hospital of Philadelphia, Philadelphia, PA.
Bruce J. Aronow, Cincinnati Children's Hospital, Cincinnati, OH.
Jinghui Zhang, St Jude Children's Research Hospital, Memphis, TN.
Olena Vaske, University of California, Santa Cruz, Santa Cruz, CA.
Todd A. Alonzo, University of Southern California, Keck School of Medicine, Los Angeles, CA.
Paul C. Nathan, The Hospital for Sick Children, Toronto, Canada.
Jenny N. Poynter, University of Minnesota, Masonic Cancer Center, Minneapolis, MN.
Greg Armstrong, St Jude Children's Research Hospital, Memphis, TN.
Erin E. Hahn, Kaiser Permanente Southern California, Los Angeles, CA.
Karen J. Wernli, Kaiser Permanente Washington Health Research Institute, Seattle, WA.
Casey Greene, University of Colorado, Aurora, CO.
Jack DiGiovanna, Seven Bridges, Boston, MA.
Adam C. Resnick, Children's Hospital of Philadelphia, Philadelphia, PA.
Eve R. Shalley, Essex Management, Rockville, MD.
Sorena Nadaf, City of Hope, Duarte, CA.
Warren A. Kibbe, Duke University, Durham, NC.

Abstract

Cancer Informatics for Cancer Centers (CI4CC) is a grassroots, nonprofit 501c3 organization intended to provide a focused national forum for engagement of senior cancer informatics leaders, primarily aimed at academic cancer centers anywhere in the world but with a special emphasis on the 70 National Cancer Institute-funded cancer centers. This consortium has regularly held topic-focused biannual face-to-face symposiums. These meetings are a place to review cancer informatics and data science priorities and initiatives, providing a forum for discussion of the strategic and pragmatic issues that we faced at our respective institutions and cancer centers. Here, we provide meeting highlights from the latest CI4CC Symposium, which was delayed from its original April 2020 schedule because of the COVID-19 pandemic and held virtually over three days (September 24, October 1, and October 8) in the fall of 2020. In addition to the content presented, we found that holding this event virtually once a week for 6 hours was a great way to keep the kind of deep engagement that a face-to-face meeting engenders. This is the second such publication of CI4CC Symposium highlights, the first covering the meeting that took place in Napa, California, from October 14-16, 2019. We conclude with some thoughts about using data science to learn from every child with cancer, focusing on emerging activities of the National Cancer Institute's Childhood Cancer Data Initiative.

Publication Title

JCO clinical cancer informatics

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