Electronic Theses and Dissertations
Identifier
6229
Date
2018
Document Type
Thesis
Degree Name
Master of Arts
Major
Sociology
Concentration
Sociology
Committee Chair
Carol Rambo
Abstract
This is an autoethnographic account of the experience of living with chronic illness and a liminal status. This reflexive study is divided into three parts: 1) Lupus, the defining diagnosis, 2) Dis-ease, identity and reevaluation 3) Dis-identification, chronic dis-ease, and liminality. Throughout, music lyrics and my own poetry are used to represent my fluctuating identity. Systemic lupus erythematous (SLE) is a rare yet complex disease. The etiology is constantly questioned by doctors and not readily seen; it is both contested and invisible. Patients with this illness are highly stigmatized, and their psychological welfare can become neglected in a biomedical system that does not account for the overall well-being of patients. This case study addresses some potential consequences for an identity tarnished in this way. Misdiagnosis is sorely understudied throughout the literature and fails to account for the lived experience of the patient. This study seeks to fill these gaps.
Library Comment
Dissertation or thesis originally submitted to the local University of Memphis Electronic Theses & dissertation (ETD) Repository.
Recommended Citation
Barnes, Brandi Michelle, "Defining Diagnosis: A Reflexive Account of a Chronic Dis-ease Process" (2018). Electronic Theses and Dissertations. 1859.
https://digitalcommons.memphis.edu/etd/1859
Comments
Data is provided by the student.