Listening to patients and parents with sickle cell disease: the totality of gene therapy risks may outweigh the perceived benefits

Authors

Liza Marie Johnson, Section of Bioethics
Akshay Sharma, Bone Marrow Transplantation and Cellular Therapy
Yvonne Carroll, St. Jude Children's Research Hospital
Dominique Goodson, Sickle Cell Community Consortium
Belinda N. Mandrell, St. Jude Children's Research Hospital
Jami Gattuso, St. Jude Children's Research Hospital
Amanda Young, University of Memphis
Jacklyn Boggs, Section of Bioethics
Benjamin S. Wilfond, Seattle Children’s Research Institute
Yoram Unguru, Johns Hopkins University

Publication Title

Blood Advances

Recommended Citation

Johnson, L., Sharma, A., Carroll, Y., Goodson, D., Mandrell, B., Gattuso, J., Young, A., Boggs, J., Wilfond, B., & Unguru, Y. (2024). Listening to patients and parents with sickle cell disease: the totality of gene therapy risks may outweigh the perceived benefits. Blood Advances, 8 (21), 5723-5724. https://doi.org/10.1182/bloodadvances.2024012963