Supporting Equity and Inclusion of Deaf and Hard-of-Hearing Individuals in Professional Organizations

Authors

Julia Jones Huyck, Speech Pathology and Audiology, Kent State University, Kent, OH, United States.
Kelsey L. Anbuhl, Center for Neural Science, New York University, New York, NY, United States.
Brad N. Buran, Oregon Hearing Research Center, Oregon Health & Science University, Portland, OR, United States.
Henry J. Adler, Center for Hearing and Deafness, State University of New York at Buffalo, Buffalo, NY, United States.
Samuel R. Atcherson, University of Arkansas for Medical Sciences, Little Rock, AR, United States.
Ozan Cakmak, New Jersey Institute of Technology, Newark, NJ, United States.
Robert T. Dwyer, Vanderbilt University Medical Center, Nashville, TN, United States.
Morgan Eddolls, Oregon Hearing Research Center, Oregon Health & Science University, Portland, OR, United States.
Fadhel El May, University Medical Center Göttingen, Göttingen, Germany.
Juergen-Theodor Fraenzer, Bioglobe GmbH, Hamburg, Germany.
Rebekah Funkhouser, Department of Audiology, Nova Southeastern University, Fort Lauderdale, FL, United States.
Mathilde Gagliardini, Institut de l'Audition, Institut Pasteur, INSERM, Paris, France.
Frederick J. Gallun, Oregon Hearing Research Center, Oregon Health & Science University, Portland, OR, United States.
Raymond L. Goldsworthy, Keck School of Medicine, University of Southern California, Los Angeles, CA, United States.
Samir Gouin, McGill University, Montréal, QC, Canada.
Joseph Heng, Department of Medicine, University of Chicago, Chicago, IL, United States.
Ariel Edward Hight, NYU Langone Medical Center, New York University, New York, NY, United States.
Zina Jawadi, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, United States.
Damir Kovacic, Faculty of Science, University of Split, Split, Croatia.
Rachit Kumar, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, United States.
Santosh Kumar, National Centre for Cell Science, S. P. Pune University Campus, Pune, India.
Stacey R. Lim, Department of Audiology, Central Michigan University, Mount Pleasant, MI, United States.
Chengeng Mo, Faculty of Education, The University of Hong Kong, Hong Kong, Hong Kong SAR, China.
Lisa S. Nolan, Wolfson Centre for Age-Related Diseases, King's College London, London, United Kingdom.
Alexandra Parbery-Clark, Swedish Neuroscience Institute, Seattle, WA, United States.
Dominic V. Pisano, Department of Anesthesiology, Tufts Medical Center, Boston, MA, United States.
Valluri R. Rao, Independent researcher, Saratoga, CA, United States.
Robert M. Raphael, Department of Bioengineering, Rice University, Houston, TX, United States.

Abstract

Disability is an important and often overlooked component of diversity. Individuals with disabilities bring a rare perspective to science, technology, engineering, mathematics, and medicine (STEMM) because of their unique experiences approaching complex issues related to health and disability, navigating the healthcare system, creatively solving problems unfamiliar to many individuals without disabilities, managing time and resources that are limited by physical or mental constraints, and advocating for themselves and others in the disabled community. Yet, individuals with disabilities are underrepresented in STEMM. Professional organizations can address this underrepresentation by recruiting individuals with disabilities for leadership opportunities, easing financial burdens, providing equal access, fostering peer-mentor groups, and establishing a culture of equity and inclusion spanning all facets of diversity. We are a group of deaf and hard-of-hearing (D/HH) engineers, scientists, and clinicians, most of whom are active in clinical practice and/or auditory research. We have worked within our professional societies to improve access and inclusion for D/HH individuals and others with disabilities. We describe how different models of disability inform our understanding of disability as a form of diversity. We address heterogeneity within disabled communities, including intersectionality between disability and other forms of diversity. We highlight how the Association for Research in Otolaryngology has supported our efforts to reduce ableism and promote access and inclusion for D/HH individuals. We also discuss future directions and challenges. The tools and approaches discussed here can be applied by other professional organizations to include individuals with all forms of diversity in STEMM.

Publication Title

Frontiers in education

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