Going straight to the source: A pilot study of bereaved parent-facilitated communication training for pediatric subspecialty fellows

Authors

Jennifer M. Snaman, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee.
Erica C. Kaye, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee.
Melody J. Cunningham, Le Bonheur Children's Hospital and the University of Tennessee Health Science Center in Memphis, Tennessee.
April Sykes, Biostatistics Department, St. Jude Children's Research Hospital, Memphis, Tennessee.
Deena R. Levine, Division of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee.
Daniel Mahoney, Le Bonheur Children's Hospital and the University of Tennessee Health Science Center in Memphis, Tennessee.
Justin N. Baker, Division of Quality of Life and Palliative Care and Director of the Pediatric Hematology/Oncology Fellowship, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee.Follow

Abstract

BACKGROUND: Medical trainees consistently report suboptimal instruction and poor self-confidence in communication skills. Despite this deficit, few established training programs provide comprehensive, pediatric-specific communication education, particularly in the provision of "bad news." To our knowledge, no programs currently use bereaved parent educators to facilitate communication training for pediatric subspecialty trainees. PROCEDURE: The authors designed and implemented a pilot communication training seminar in which bereaved parent educators and faculty facilitators led small groups in interactive, role-play scenarios. Surveys incorporating a retrospective preprogram assessment item to account for response-shift bias were used to assess short- and long-term changes in trainee comfort with delivering "bad news." RESULTS: Fifteen pediatric fellowship trainees participated in the communication seminar; complete data were available for 12 participants. After accounting for response-shift bias, participants reported significant improvement in overall preparedness, breaking bad news to a patient and family, and including the adolescent or young adult patient in conversations. Additionally, participants reported a significant improvement in their ability to address a patient and family's need for information, emotional suffering at the end of life (EOL), if and when a patient should be included in the conversation, and EOL care decisions. The participant's self-perceived improvement in comfort and preparedness persisted over time. CONCLUSIONS: Communication training for pediatric subspecialty trainees using bereaved parent educators is feasible and effective. Both medical trainee and bereaved parent participants benefited from involvement in this pilot study. Further iterations of this training will be modified to assess objective measures of improvement in trainees' communication skills.

Publication Title

Pediatric blood & cancer

Recommended Citation

Snaman, Jennifer M.; Kaye, Erica C.; Cunningham, Melody J.; Sykes, April; Levine, Deena R.; Mahoney, Daniel; and Baker, Justin N., "Going straight to the source: A pilot study of bereaved parent-facilitated communication training for pediatric subspecialty fellows" (2017). Loewenberg College of Nursing Faculty Publications. 59.
https://digitalcommons.memphis.edu/lcon-facpubs/59