Keeping users at the center: Developing a multimedia interface for informed consent

Authors

Loel Kim, University of MemphisFollow
Amanda J. Young, University of MemphisFollow
Robert A. Neimeyer, University of Memphis
Justin N. Baker, St. Jude Children's Research HospitalFollow
Raymond C. Barfield, St. Jude Children's Research HospitalFollow

Abstract

Viewing “informing” as a process to protect patients and support autonomy, we undertook a user-centered design process to develop online support for informed consent in pediatric Phase I research trials. Challenges included (a) delivering accurate information to people unfamiliar with medical terminology; (b) delivering this information humanely under time constraints and heightened emotions; (c) allowing users control over the information, while ensuring availability of legally required information. We addressed these challenges through analyses of audience, task, and information design. © 2008 Taylor & Francis Group, LLC.

Publication Title

Technical Communication Quarterly

Recommended Citation

Kim, L., Young, A., Neimeyer, R., Baker, J., & Barfield, R. (2008). Keeping users at the center: Developing a multimedia interface for informed consent. Technical Communication Quarterly, 17 (3), 335-357. https://doi.org/10.1080/10572250802100451